So I had my allergy test scheduled for July 9th. I finished all the steroid that Lindsey gave me about 5-6 days prior to my appt. I really didn't think anything of it because it wasn't one of the medications that's listed on the paper they give you of medications not to take prior to testing. Thus the saga begins....
I ended up being 15 minutes late for my appt because I woke up to a nearly flat tire. Awesome. I picked up my brother to take him to work and filled my tire up with air at my dad's shop. I figured I'd just go in and get it looked at after my appt. Um...no. After I fill it up I can hear the air coming out of it. Not awesome. I dropped my brother off at work and headed straight for Les Schwab. I was hoping it would be a quick 20 minute fix seeing as it was already 8:30 and my appt was at 9 in North Logan. Turns out, it was not a quick anything fix. I didn't leave Les Schwab until about 9. Luckily it was only a rock that created a hole in my tire and they were able to at least fix it.
I made it almost to the allergy clinic when they called to tell me that if I wasn't there by 9:30 I was going to have to reschedule. I had called at 8:50 and left a msg with one of the receptionists at the ENT's office (they run the allergy clinic too) about what was going on and she said she'd let them know. Fortunately for me, I was just down the street at this point. I finally get there and get in and they get the test started. I was lucky, they used my forearms for the test rather than my back like they do on the kids. About 10 minutes after they poke me a nurse comes in to do my controls. She does the controls up on my right arm and says she'll be back in 10 minutes. Meanwhile I'm waiting for my arms to start breaking out like mad because my right arm is starting to itch. After 10 more minutes goes by the nurse comes back in and says, "Well that's weird. You're reacting to one you aren't suppose to. Let's do this again." Thus I get the control shots (3) a second time. Another 10 minutes goes by and she comes back to....surprise...the same results. She decides that the 3rd time's the charm and does the controls yet again. Another 10 minutes goes by and the same result. She gets another nurse to come in and look at it. She asks me "Why do you have to be so difficult?!" I just look at her and said, "Well, you've met my kids, right?" She laughed and said "Oh yea." They decide to stick me with a rye and a grass and come back 10 minutes later. The grass was about the size of a nickel and the rye wasn't too little either. The poor girls are stumped as to why I"m having the reaction that I am having. Sonya asks me if I've quit all the meds I"m suppose to and if I ate any of the foods I'm not suppose to. I tell her yes and no. She asks if there are any other meds I've taken like steroids. I tell her that I finished my steroids about Thursday or Friday of the week prior (it's Monday). She looks at me and says, "Oh that is still in your system. This test isn't valid. You're going to have to come back and do this all over again!" Crap.
For this test I had reacted to grass, sagebrush, a little bit to Box Elder and a little bit to Malt. My grass reaction was very, very large. Sonya told me she thinks I'm going to be super allergic when I do this test again because the steroid was masking my reaction. Awesome.
So, I've rescheduled for August 5th. Here's to hoping that I have a good end result
Sunday, July 20, 2014
Monday, June 23, 2014
Mom's turn at the ENT
Last week I ventured in to see Dr. Blotter about myself. It started shortly after Brooke had her prick test done. I was talking to Travis on the phone one night and he had googled "What can I eat if I have a milk allergy." Being a smart alec, I told him he should have googled "What can I eat if I have a corn allergy?" because that was what she reacted to the most. So, being who he is, he did it. He found this article: http://www.cornallergens.com/symptoms/corn-allergy-symptoms-history.php It's a blog post that describes one woman's journey to learn she had a corn allergy. Growing up she was diagnosed with multiple different medical issues. Later in life she found out she had a corn allergy. Once she eliminated corn, all her problems went away. Travis told me he thought it sounded like me and that I should go get allergy tested. I think it sounds like my dad too. So, hence the reason I went to visit our beloved Dr. Blotter.
Anyway, I explained all of this to Dr. Blotter. As he listened I could tell he didn't think I was completely insane. He actually jokingly made the comment, "Ah, the matriarch of the family. I've had my suspicions for years!" After I finished telling him all of this he looks in my ears, throat, etc. He was surprised to see I still have my tonsils. He mentioned that they were large and "grainy looking." He proceeded to tell me that the bacteria that causes strep can have rheumatilogical consequences (like rheumatic fever) that can actually present as arthritis like symptoms. He said he doesn't want to just go in and take out my tonsils because I'm an adult and it's a rough recovery for an adult. His theory is that he would give me a prescription that would kill any strep like bacteria to see if it improved my arthritis symptoms at all. Since I"m allergic to penicillin, I got Bactrim (aka Septra). I was suppose to take this prescription twice a day for ten days. Before I left the dr.'s office I went over to the allergy clinic to schedule my prick test. They couldn't get me in until July 9th so that's what I took. In discussing all the allergy testing options with Dr. Blotter he told me that if I want to really be certain of allergies I need to have RAST testing done as well. RAST testing is just blood work that tests for elevated levels of particular allergens. Once I got the call from the dr.'s office telling my my insurance would cover all the allergy testing I went and got the blood work done. That RAST testing, came back completely negative. That means there were no elevated levels of any of the allergens that were tested for (all the food allergies and a few of the tree/grass/pollen ones). I'm still scheduled for my prick test on July 9th.
I began taking the Septra on June 16th. Since I didn't take any until that evening, I only got one dose that day. It was Tuesday that I started my twice a day doses. I noticed Tuesday evening/Wednesday morning that I was having pain in my feet and hands. I was getting pain across the bottom of my toes and on the balls of my feet. Behind my knees it felt like when I would extend my legs that a tendon was being pulled down into my calf. My hands were horrendous. My left thumb on the top - not necessarily in the joint but at the joint points. Also the left pointer finger. When either of those fingers moved pain would shoot down into my wrist. But it wasn't into the center of my wrist, it was the inside and outside of my wrist. On my right hand it was my ring and pinkie fingers. If I tried to open my fingers to lay my hand flat it felt as though a string was attached to the tips of my fingers and it was trying to rip the muscle below all of my fingers up and off. Each day got progressively worse and worse. By Sunday it had hit my knees. Not my entire knees though. Just the inside of both my knees. It's also been affecting my shoulders and my right shoulder blade area. I've been telling Travis since about Wednesday that I either needed a lead pill or a mega dose of narcotics. I've been trying not to take Aleve because that's one of the drugs you have to give up five days prior to your prick test. I can take Tylenol though. Tylenol arthritis hasn't touched it. I had my mom drive me to Walmart on Sunday and I got some extra strength Tylenol. It has helped a smidge more than the Tylenol arthritis, but that's about it.
I have quite literally spent the entire last week mostly in bed and sleeping. This is highly uncharacteristic of me. I can't even sit and watch tv without something to do with my hands. I've been trying to get my "spring" cleaning finished and Relay stuff wrapped up. This has put a serious kink in my day to day operations. I have not been able to life B (or much of anything else) because when I do it feels as though my thumbs are going to be ripped completely off my hand. What's worse is that after I lay down and fall asleep I'll sleep for like 4+ hrs at a time. When I wake up I don't even move before I have a "Dear Lord how have I been sleeping!" sort of response. Trying to move any muscles at all nearly puts me in tears. My feet feel as though they did when I was pregnant with Caleb (stuffed sausages that are going to split open if I put any pressure on them). It's all I can do to actually sit up. Standing up and getting dressed has been rather painful and almost impossible. Stairs? Um, no - just no. I probably should not have legally been driving today either.
On Sunday I was talking to my mom and she told me to call the dr. on call and see what they said. I called and talked to Dr. Wood (not my regular ENT - obviously - and not my preferred choice but beggars can't be choosers at this point. I told him what was going on and why I was on the medicine. He asked if I had a rash. I told him no rash. He said that as long as I don't have a rash I"m good because the rash is what they are the most concerned with. He did say that it sounded like it was likely a reaction to the Septra and to go ahead and quit taking it and follow up with Dr. Blotter on Monday.
On Sunday night I was literally in tears from the pain. I finally decided to get into a hot bath because that's what helps the most when my arthritis is kicking my butt. I had sent my mom a text a bit earlier saying "I want my mommy!!!!". I told Sam that if grandma called or texted me back to let her know I was hurting bad. Lucky for me my mom did text back and Sam did respond. Mom got there in time to help pull my poor self out of the bath tub - otherwise I would have been stranded! Lucky for me my mom stayed and helped get my kids in bed. I went to bed and tossed and turned most of the night.
I called Dr. Blotter's office at about 11 am today. I had to leave a message for the nurse on the nurses's line because they were on the line with someone else. We finished dance lessons, did allergy shots, dropped Sam at a friends house, had some lunch and then B and I laid down to watch Alice in Wonderland at about 2. I woke up at 4:15 to Dr. Blotter's nurse finally calling me back. She told me she didn't dare not have me come in because it sounded like I was having a weird reaction to the medicine. She told me to just come in right then and she'd get me in to see the PA, Lindsey (who we also really like). So, I picked Sam up from her friend's house, dropped Sam off at dance and went to the ENT. The boys walked over to grandma Kris and grandpa Scott's house and I took B in with me.
After talking to Lindsey she told me that she felt like it was a very rare allergic reaction to the Septra and that I should for sure never take a Sulfa based medicine again. You don't need to tell me twice! She said she wanted to blast me with steroids to get me feeling better and then when I"m feeling much better to try a different antibiotic to try the whole strep bacteria killing theory again. I got a shot of Dexamethazone while I was in the office and she gave me enough of that same steroid to go for about ten days. After that I will be on a double z pack to try and kill any strep bacteria. So, here it is about 6 hrs post steroid shot and I have regained a painless use of my hands! Wahoo! My knees, hips and feet are another story entirely but I"m hoping that will come tomorrow or the next day.
A funny side note - when I walked back into the room following the nurse (it's once who works over in the allergy clinic too so we know her well) she told Brooke, "Why is your mom being such a trouble maker?" B looked at her and without missing a beat she says, "Cuz." I smiled and told her, "Don't you know by now? It's what we do." She laughed and said, "Yea, I know!"
Anyway, I explained all of this to Dr. Blotter. As he listened I could tell he didn't think I was completely insane. He actually jokingly made the comment, "Ah, the matriarch of the family. I've had my suspicions for years!" After I finished telling him all of this he looks in my ears, throat, etc. He was surprised to see I still have my tonsils. He mentioned that they were large and "grainy looking." He proceeded to tell me that the bacteria that causes strep can have rheumatilogical consequences (like rheumatic fever) that can actually present as arthritis like symptoms. He said he doesn't want to just go in and take out my tonsils because I'm an adult and it's a rough recovery for an adult. His theory is that he would give me a prescription that would kill any strep like bacteria to see if it improved my arthritis symptoms at all. Since I"m allergic to penicillin, I got Bactrim (aka Septra). I was suppose to take this prescription twice a day for ten days. Before I left the dr.'s office I went over to the allergy clinic to schedule my prick test. They couldn't get me in until July 9th so that's what I took. In discussing all the allergy testing options with Dr. Blotter he told me that if I want to really be certain of allergies I need to have RAST testing done as well. RAST testing is just blood work that tests for elevated levels of particular allergens. Once I got the call from the dr.'s office telling my my insurance would cover all the allergy testing I went and got the blood work done. That RAST testing, came back completely negative. That means there were no elevated levels of any of the allergens that were tested for (all the food allergies and a few of the tree/grass/pollen ones). I'm still scheduled for my prick test on July 9th.
I began taking the Septra on June 16th. Since I didn't take any until that evening, I only got one dose that day. It was Tuesday that I started my twice a day doses. I noticed Tuesday evening/Wednesday morning that I was having pain in my feet and hands. I was getting pain across the bottom of my toes and on the balls of my feet. Behind my knees it felt like when I would extend my legs that a tendon was being pulled down into my calf. My hands were horrendous. My left thumb on the top - not necessarily in the joint but at the joint points. Also the left pointer finger. When either of those fingers moved pain would shoot down into my wrist. But it wasn't into the center of my wrist, it was the inside and outside of my wrist. On my right hand it was my ring and pinkie fingers. If I tried to open my fingers to lay my hand flat it felt as though a string was attached to the tips of my fingers and it was trying to rip the muscle below all of my fingers up and off. Each day got progressively worse and worse. By Sunday it had hit my knees. Not my entire knees though. Just the inside of both my knees. It's also been affecting my shoulders and my right shoulder blade area. I've been telling Travis since about Wednesday that I either needed a lead pill or a mega dose of narcotics. I've been trying not to take Aleve because that's one of the drugs you have to give up five days prior to your prick test. I can take Tylenol though. Tylenol arthritis hasn't touched it. I had my mom drive me to Walmart on Sunday and I got some extra strength Tylenol. It has helped a smidge more than the Tylenol arthritis, but that's about it.
I have quite literally spent the entire last week mostly in bed and sleeping. This is highly uncharacteristic of me. I can't even sit and watch tv without something to do with my hands. I've been trying to get my "spring" cleaning finished and Relay stuff wrapped up. This has put a serious kink in my day to day operations. I have not been able to life B (or much of anything else) because when I do it feels as though my thumbs are going to be ripped completely off my hand. What's worse is that after I lay down and fall asleep I'll sleep for like 4+ hrs at a time. When I wake up I don't even move before I have a "Dear Lord how have I been sleeping!" sort of response. Trying to move any muscles at all nearly puts me in tears. My feet feel as though they did when I was pregnant with Caleb (stuffed sausages that are going to split open if I put any pressure on them). It's all I can do to actually sit up. Standing up and getting dressed has been rather painful and almost impossible. Stairs? Um, no - just no. I probably should not have legally been driving today either.
On Sunday I was talking to my mom and she told me to call the dr. on call and see what they said. I called and talked to Dr. Wood (not my regular ENT - obviously - and not my preferred choice but beggars can't be choosers at this point. I told him what was going on and why I was on the medicine. He asked if I had a rash. I told him no rash. He said that as long as I don't have a rash I"m good because the rash is what they are the most concerned with. He did say that it sounded like it was likely a reaction to the Septra and to go ahead and quit taking it and follow up with Dr. Blotter on Monday.
On Sunday night I was literally in tears from the pain. I finally decided to get into a hot bath because that's what helps the most when my arthritis is kicking my butt. I had sent my mom a text a bit earlier saying "I want my mommy!!!!". I told Sam that if grandma called or texted me back to let her know I was hurting bad. Lucky for me my mom did text back and Sam did respond. Mom got there in time to help pull my poor self out of the bath tub - otherwise I would have been stranded! Lucky for me my mom stayed and helped get my kids in bed. I went to bed and tossed and turned most of the night.
I called Dr. Blotter's office at about 11 am today. I had to leave a message for the nurse on the nurses's line because they were on the line with someone else. We finished dance lessons, did allergy shots, dropped Sam at a friends house, had some lunch and then B and I laid down to watch Alice in Wonderland at about 2. I woke up at 4:15 to Dr. Blotter's nurse finally calling me back. She told me she didn't dare not have me come in because it sounded like I was having a weird reaction to the medicine. She told me to just come in right then and she'd get me in to see the PA, Lindsey (who we also really like). So, I picked Sam up from her friend's house, dropped Sam off at dance and went to the ENT. The boys walked over to grandma Kris and grandpa Scott's house and I took B in with me.
After talking to Lindsey she told me that she felt like it was a very rare allergic reaction to the Septra and that I should for sure never take a Sulfa based medicine again. You don't need to tell me twice! She said she wanted to blast me with steroids to get me feeling better and then when I"m feeling much better to try a different antibiotic to try the whole strep bacteria killing theory again. I got a shot of Dexamethazone while I was in the office and she gave me enough of that same steroid to go for about ten days. After that I will be on a double z pack to try and kill any strep bacteria. So, here it is about 6 hrs post steroid shot and I have regained a painless use of my hands! Wahoo! My knees, hips and feet are another story entirely but I"m hoping that will come tomorrow or the next day.
A funny side note - when I walked back into the room following the nurse (it's once who works over in the allergy clinic too so we know her well) she told Brooke, "Why is your mom being such a trouble maker?" B looked at her and without missing a beat she says, "Cuz." I smiled and told her, "Don't you know by now? It's what we do." She laughed and said, "Yea, I know!"
Saturday, May 31, 2014
A follow up with Dr. Blotter
Today we went back to visit with our ENT. The appointment was scheduled as a follow up to B's prick allergy test last week and discuss the CF test/Immunologist appointment.
When Dr. Blotter first came in and asked how we were doing I just looked at him and said, point blank, "Please. Do not EVER send anyone back to that immunologist. Ever again." He looked at me kind of surprised and said, "Really? That bad huh?" I proceeded to tell him that Dr. Firszt was the more arrogant, rude person I had met in a very long time. I told him about how he was so rude about the food allergy testing, etc. Dr. Blotter said he had only ever had to send a handful of people to immunology over the years and he hadn't ever gotten a bad report. He did however have a friend that's a nurse at LRH that took her daughter to Dr. Firszt on his referral and she didn't care much for him either. I told him if she was treated the way I was I don't blame her a bit! He told me he was glad to get that feedback and would keep that in mind in the future. Hopefully I saved someone a very aggravating experience.
Dr. Blotter checked both of B's ears. In her left ear she has one tube open but the other is blocked. Both tubes in her right ear are blocked. However, even with 3 of her 4 tubes being blocked her ear drums aren't bulging. Which happens to be a VERY big deal for little sister because her ear drums are ALWAYS bulging. I told Dr. Blotter that since we had taken her off of all dairy that she has shown huge improvements - the perpetual rattle in her chest is all but gone. After looked in her ears he agreed that she has made huge progress. Yay!
So, we have a couple options now.
Option #1:
Allegra, singular, continue strict no dairy diet, special drops under her tongue (explanation in a second)
Option #2:
Allegra, singular, continue strict no dairy diet, remove malfunctioning tubes, place new tubes in ears
Let me explain the drops. I asked Dr. Blotter if B was a candidate for allergy shots. I assumed that's what they would do since she had reactions to so many airborne. He told me that right now she's too young so she's not a candidate for shots. Apparently, in Europe, most people don't do allergy shots, rather they do this drop under their tongue. This drop is a special mixture that acts like allergy shots. Dr. Blotter said he believes that B will have a better response to it, it helps with some food allergies and it's safer for B than an allergy shot. Here's the kicker. The FDA hasn't approved the drops in America. This means that they aren't covered by insurance and cost roughly $1,200/yr. I'm assuming that he has other patients that do or have done them because he said that they have them made special at their lab.
And this folks, is why I LOVE my ENT and won't go anywhere else.
After thinking about our options, Dr. Blotter says to me, "You know what? I'm going to make you a deal. I will PERSONALLY pay for the drops for her if you will use them." I told him I'm willing to try about anything with this child of mine. He looked at me and said, "Ok. I'll get the drops ordered."
Option #3:
The other option we have on the table right now is a little scary of an option but still one to consider. This option is called a mastoidectomy. According to the website medline plus: A mastoidectomy is surgery to remove cells in the hollow, air-filled spaces in the skull behind the ear. These cells are called mastoid air cells. The way Dr. Blotter explained this to me is that they cut an opening behind the ear and go in and cut out a section of bone in or near the middle ear. This surgery is a 2 1/2 hr surgery. It is an outpatient surgery and they do have to put a compression wrap on after surgery for 24 hrs. This option, however, is a much more permanent solution than yet another set of tubes. I asked Dr. Blotter what would push us from yet another set of tubes to a mastoidectomy. He said that if B has chronic ear infections or blocked tubes this winter that that is the route he would suggest rather than put another set of tubes in.
Dr. Blotter did say that doing a mastoidectomy on a child is rare. Doing a double mastoidectomy on a child is even more rare. Apparently they do these an adults with chronic ear problems rather regularly, they just generally don't have kids like mine come across too often because tubes generally work for kids!
So, right now we are doing option #1. We will begin a daily dose of allegra and singular, We will continue to stick to a very STRICT no dairy diet and we will begin the special drops as soon as they are ready. We did get word back from PCH that the CF test was negative (as we figured it would be) so that's great news. We are still waiting on test results from Dr. Firszt's office so we are still playing a waiting game. We did schedule a follow up for 6 weeks from now to check and see how things are going so hopefully we will get more good news at that visit!
When Dr. Blotter first came in and asked how we were doing I just looked at him and said, point blank, "Please. Do not EVER send anyone back to that immunologist. Ever again." He looked at me kind of surprised and said, "Really? That bad huh?" I proceeded to tell him that Dr. Firszt was the more arrogant, rude person I had met in a very long time. I told him about how he was so rude about the food allergy testing, etc. Dr. Blotter said he had only ever had to send a handful of people to immunology over the years and he hadn't ever gotten a bad report. He did however have a friend that's a nurse at LRH that took her daughter to Dr. Firszt on his referral and she didn't care much for him either. I told him if she was treated the way I was I don't blame her a bit! He told me he was glad to get that feedback and would keep that in mind in the future. Hopefully I saved someone a very aggravating experience.
Dr. Blotter checked both of B's ears. In her left ear she has one tube open but the other is blocked. Both tubes in her right ear are blocked. However, even with 3 of her 4 tubes being blocked her ear drums aren't bulging. Which happens to be a VERY big deal for little sister because her ear drums are ALWAYS bulging. I told Dr. Blotter that since we had taken her off of all dairy that she has shown huge improvements - the perpetual rattle in her chest is all but gone. After looked in her ears he agreed that she has made huge progress. Yay!
So, we have a couple options now.
Option #1:
Allegra, singular, continue strict no dairy diet, special drops under her tongue (explanation in a second)
Option #2:
Allegra, singular, continue strict no dairy diet, remove malfunctioning tubes, place new tubes in ears
Let me explain the drops. I asked Dr. Blotter if B was a candidate for allergy shots. I assumed that's what they would do since she had reactions to so many airborne. He told me that right now she's too young so she's not a candidate for shots. Apparently, in Europe, most people don't do allergy shots, rather they do this drop under their tongue. This drop is a special mixture that acts like allergy shots. Dr. Blotter said he believes that B will have a better response to it, it helps with some food allergies and it's safer for B than an allergy shot. Here's the kicker. The FDA hasn't approved the drops in America. This means that they aren't covered by insurance and cost roughly $1,200/yr. I'm assuming that he has other patients that do or have done them because he said that they have them made special at their lab.
And this folks, is why I LOVE my ENT and won't go anywhere else.
After thinking about our options, Dr. Blotter says to me, "You know what? I'm going to make you a deal. I will PERSONALLY pay for the drops for her if you will use them." I told him I'm willing to try about anything with this child of mine. He looked at me and said, "Ok. I'll get the drops ordered."
Option #3:
The other option we have on the table right now is a little scary of an option but still one to consider. This option is called a mastoidectomy. According to the website medline plus: A mastoidectomy is surgery to remove cells in the hollow, air-filled spaces in the skull behind the ear. These cells are called mastoid air cells. The way Dr. Blotter explained this to me is that they cut an opening behind the ear and go in and cut out a section of bone in or near the middle ear. This surgery is a 2 1/2 hr surgery. It is an outpatient surgery and they do have to put a compression wrap on after surgery for 24 hrs. This option, however, is a much more permanent solution than yet another set of tubes. I asked Dr. Blotter what would push us from yet another set of tubes to a mastoidectomy. He said that if B has chronic ear infections or blocked tubes this winter that that is the route he would suggest rather than put another set of tubes in.
Dr. Blotter did say that doing a mastoidectomy on a child is rare. Doing a double mastoidectomy on a child is even more rare. Apparently they do these an adults with chronic ear problems rather regularly, they just generally don't have kids like mine come across too often because tubes generally work for kids!
So, right now we are doing option #1. We will begin a daily dose of allegra and singular, We will continue to stick to a very STRICT no dairy diet and we will begin the special drops as soon as they are ready. We did get word back from PCH that the CF test was negative (as we figured it would be) so that's great news. We are still waiting on test results from Dr. Firszt's office so we are still playing a waiting game. We did schedule a follow up for 6 weeks from now to check and see how things are going so hopefully we will get more good news at that visit!
Tuesday, May 27, 2014
Brooke's trip to SLC for testing
Today was the day we headed down to SLC for Brooke's appointment with the immunologist and cystic fibrosis test at Primary Children's Hospital.
First of all, the immunologist was a moron. And a very cocky moron at that. Dr. Firszt was his name and I would NEVER go see that man again. We waited for 30 minutes past our appointment time plus, we were there early! The nurse took us back and started asking questions I had just answered on the paperwork that I filled out in the waiting room and handed to HER! Duh. After the nurse left an intern for internal medicine came in She too proceeded to ask me questions that had answers written down on the paper work AND typed into her file which was PULLED UP ON THE COMPUTER IN FRONT OF HER. Duh again! At least she was nice. She checked B's ears, nose and throat. No comment on any of that. Listened to her lungs and said they sounded good. Looked at her eczema and no comment on that. She told me she would talk to the dr. and be right back.
Dr. Firszt walks into the room and the first thing he says to me is "Who referred you?" Not a hi, how you doing, nothing. When I told him it was James Blotter that had referred us his comment was, "Well I don't know him." I just sat there thinking, "Um, so?" Dr. Firszt spent 10 minutes tops with us. He asked if B had been allergy tested and I said yes, her prick test was last week and her blood test was several months ago. He started asking what she had reacted to so I started ticking all the things off. He asked how allergic of a response she had had to milk so I told him a 4 mm reaction. I kept ticking off items and came to dog. He asked how big of a reaction that was so I said 4 mm again. I told Dr. Firszt that Dr. Blotter's office had asked us to take B off of all dairy at her appt 3 weeks ago and since I had done that the rattle in her chest had all but disappeared. This man then tells me, "Well, I can't make you do anything but if you're going to take her off of all dairy then you should eliminate the dog too since they had the same reaction." He proceeds to tell me that people who are allergic to dogs are allergic to their saliva not there dander but if I don't eliminate the dog then I need to bathe it at least 2 times a week and definitely don't let it in her room. Um, did you just listen to yourself? She isn't allergic to the dander but I have to bathe her 2 a week? WHY? He also proceeded to tell me that he never tests for food allergies unless the patient has a direct correlation between the food and a reaction because you often times get a lot of false positives so then people end up with a list of 15 foods they think they are allergic to but really aren't. I told him that her brother has the same issue with diary. Apparently, I'm still the moron who doesn't know what she's talking about. Dr. Firszt tells me that he can do a test but, "Are all her immunizations up to date." Um, yes. He has to draw blood and then he puts an immunization into the blood sample and if the blood reacts appropriately to the immunization as it should for someone who has been immunized then it's just allergies. If it doesn't give the appropriate response then she will have to have a booster to that immunization and then come back in four weeks and do it all again. Seriously? Yea, cuz I totally want to deal with this guy twice. So, off we go to the lab. The nurses there were great. There were two of them and they helped hold B and they got her on the first stick. I felt bad because they took like 7 vials of blood. Supposedly we will have results in no more than seven days.
After that fun experience we went and had lunch with Grandma Terri at Sizzler. Once we finished there we headed to our next adventure over at Primary Children's Hospital. Mind you, the nurse that made my appointment at PCH never told me who to see or where to go, just that we had a 1:00 pm appointment for the sweat test for cystic fibrosis.
We made it to Primary Children's just in the nick of time. We went on a small wild goose chase until we found out where we were suppose to be. The lab sent us back to registration so we could get registered. Then registration sent us back to the lab. That lab took us up to the second floor to the outpatient lab. The guy and girl that took care of us at that lab were fantastic! They explained everything they were doing to B as they were doing it. Mind you, B has had her 50 prick allergy test last Wednesday and just had seven vials of blood drawn so she's pretty skeptical about specific blue chairs with large arm rests. Poor B figured she knew what she was in for when she saw the chair and tried to make a break for it. I assured her there would be no owies. Didn't matter. Poor sister screamed her little guts out for a solid 5-10 minutes. They cleaned her arms off (yes ARMS). They put some sort of chemical on a piece of gauze and then placed it on her arms about an inch or so above both wrists. After the gauze was down they placed a copper cuff on her arm and secured it onto her like a bracelet. At this point they hooked her up to a battery - no, I'm not even joking. They turned the battery on and proceeded to shock her on both wrists for a good FIVE minutes. The girl said it feels like your arm is going to sleep but just in that one place. I find it a little difficult to believe that's all it feels like. After that five minute torture was over they unplugged her and took everything off. Then, they wiped her arm down and dried it off. At this point they place a clean dry piece of gauze on the now red square patch she has on her arm. They wrap plastic around said gauze a good two to three times. The plastic is secured in place by some awesome pink and purple corban. A heating pack is then secured to the corban on both arms. At this point, she was given, "a princess blanket" aka a heat blanket and a timer is set for 30 minutes. We got to go to the Forever Young room so she could play while we waited it out. Poor kid could barely bend her arms so she didn't get to play much. Plus, she was pretty skeptical about what we were doing in a new location.
First of all, the immunologist was a moron. And a very cocky moron at that. Dr. Firszt was his name and I would NEVER go see that man again. We waited for 30 minutes past our appointment time plus, we were there early! The nurse took us back and started asking questions I had just answered on the paperwork that I filled out in the waiting room and handed to HER! Duh. After the nurse left an intern for internal medicine came in She too proceeded to ask me questions that had answers written down on the paper work AND typed into her file which was PULLED UP ON THE COMPUTER IN FRONT OF HER. Duh again! At least she was nice. She checked B's ears, nose and throat. No comment on any of that. Listened to her lungs and said they sounded good. Looked at her eczema and no comment on that. She told me she would talk to the dr. and be right back.
Dr. Firszt walks into the room and the first thing he says to me is "Who referred you?" Not a hi, how you doing, nothing. When I told him it was James Blotter that had referred us his comment was, "Well I don't know him." I just sat there thinking, "Um, so?" Dr. Firszt spent 10 minutes tops with us. He asked if B had been allergy tested and I said yes, her prick test was last week and her blood test was several months ago. He started asking what she had reacted to so I started ticking all the things off. He asked how allergic of a response she had had to milk so I told him a 4 mm reaction. I kept ticking off items and came to dog. He asked how big of a reaction that was so I said 4 mm again. I told Dr. Firszt that Dr. Blotter's office had asked us to take B off of all dairy at her appt 3 weeks ago and since I had done that the rattle in her chest had all but disappeared. This man then tells me, "Well, I can't make you do anything but if you're going to take her off of all dairy then you should eliminate the dog too since they had the same reaction." He proceeds to tell me that people who are allergic to dogs are allergic to their saliva not there dander but if I don't eliminate the dog then I need to bathe it at least 2 times a week and definitely don't let it in her room. Um, did you just listen to yourself? She isn't allergic to the dander but I have to bathe her 2 a week? WHY? He also proceeded to tell me that he never tests for food allergies unless the patient has a direct correlation between the food and a reaction because you often times get a lot of false positives so then people end up with a list of 15 foods they think they are allergic to but really aren't. I told him that her brother has the same issue with diary. Apparently, I'm still the moron who doesn't know what she's talking about. Dr. Firszt tells me that he can do a test but, "Are all her immunizations up to date." Um, yes. He has to draw blood and then he puts an immunization into the blood sample and if the blood reacts appropriately to the immunization as it should for someone who has been immunized then it's just allergies. If it doesn't give the appropriate response then she will have to have a booster to that immunization and then come back in four weeks and do it all again. Seriously? Yea, cuz I totally want to deal with this guy twice. So, off we go to the lab. The nurses there were great. There were two of them and they helped hold B and they got her on the first stick. I felt bad because they took like 7 vials of blood. Supposedly we will have results in no more than seven days.
After that fun experience we went and had lunch with Grandma Terri at Sizzler. Once we finished there we headed to our next adventure over at Primary Children's Hospital. Mind you, the nurse that made my appointment at PCH never told me who to see or where to go, just that we had a 1:00 pm appointment for the sweat test for cystic fibrosis.
We made it to Primary Children's just in the nick of time. We went on a small wild goose chase until we found out where we were suppose to be. The lab sent us back to registration so we could get registered. Then registration sent us back to the lab. That lab took us up to the second floor to the outpatient lab. The guy and girl that took care of us at that lab were fantastic! They explained everything they were doing to B as they were doing it. Mind you, B has had her 50 prick allergy test last Wednesday and just had seven vials of blood drawn so she's pretty skeptical about specific blue chairs with large arm rests. Poor B figured she knew what she was in for when she saw the chair and tried to make a break for it. I assured her there would be no owies. Didn't matter. Poor sister screamed her little guts out for a solid 5-10 minutes. They cleaned her arms off (yes ARMS). They put some sort of chemical on a piece of gauze and then placed it on her arms about an inch or so above both wrists. After the gauze was down they placed a copper cuff on her arm and secured it onto her like a bracelet. At this point they hooked her up to a battery - no, I'm not even joking. They turned the battery on and proceeded to shock her on both wrists for a good FIVE minutes. The girl said it feels like your arm is going to sleep but just in that one place. I find it a little difficult to believe that's all it feels like. After that five minute torture was over they unplugged her and took everything off. Then, they wiped her arm down and dried it off. At this point they place a clean dry piece of gauze on the now red square patch she has on her arm. They wrap plastic around said gauze a good two to three times. The plastic is secured in place by some awesome pink and purple corban. A heating pack is then secured to the corban on both arms. At this point, she was given, "a princess blanket" aka a heat blanket and a timer is set for 30 minutes. We got to go to the Forever Young room so she could play while we waited it out. Poor kid could barely bend her arms so she didn't get to play much. Plus, she was pretty skeptical about what we were doing in a new location.
We were told that our timer was set for 25 minutes instead of the full 30 because once the 30 minutes was up they had exactly 60 seconds to collect the sweat for the test. So, we headed back five minutes before our timer went off, just to be sure because heaven knows we did not want to do this a second time. We made it back to the outpatient lab in plenty of time. Sister knew they were removing everything that was making her hot so she didn't freak out when we walked back in. Actually, to my surprise, she climbed up on my lap in the chair and tuned into Monsters University that they had playing on the tv. Once that 30 minute timer went off all of her stuff came off in about 10 seconds and the sweaty gauze was collected and placed into little vials. I was then told, "Hold on while we weigh it to be sure we have enough." Yea, didn't see that coming! They had to get .7 grams (I'm guessing grams) and they got .82 so we barely had enough sweaty gauze and didn't have to do it all over again. Whew. They didn't tell us if they'd call with the results or mail them or anything so who the heck knows when we'll hear/see these results.
My poor girl was so good today even after being poked and prodded so much. She was even attached to my side. I figured she wouldn't want anything to do with me since I was the mean one holding her down but she did NOT want anything to do with Grandma today. I'm sure glad Grandma went with though because it would have made for a super long day without the extra help!
Here's to hoping we don't ever have to go back to PCH or that immunologists office EVER again!
Thursday, May 22, 2014
Brooke's Allergy Test Results
Well, it's really no surprise over here that sister is allergic to.....pretty much everything. She is by far the worst one of the bunch! Caleb was only food allergies. Sam & Nash were a mix of the two. Brooke, well, she reacted to nearly every food (21/30) and nearly every airborne allergen (15/26) they stuck her with. Poor baby. Not sure what they're going to do. The thing I thought was weird was that her milk allergy only registered a four. Corn and lettuce registered at a SEVEN. Yes, corn and LETTUCE. Who the heck is allergic to lettuce? Oh, right, Caleb and Brooke! That's who! Was I really surprised by this? Actually, yes.
The foods that this poor girl is allergic to are cows milk, egg yolk, egg white, almond, yeast, lettuce, corn, wheat, rye, banana, beef, cacao bean, carrot, green pepper, honeydew, lettuce, oat, onion, pork, rice, strawberry, tomato and whole wheat. Wondering what kind of milk that leaves for her to drink? Maybe goat milk? Soy has almond in it.
Her airborne allergens are aspen, birch, box elder, elm, juniper, alfalfa, bermuda, rye, grain, cocklebur, pigweed, plantain, mucor (mold), penicillium and cat.
Good thing we go see that immunologist next Tuesday. Meanwhile we scheduled a follow up with Dr. Blotter for Friday May 30. I'm willing to place money on him wanting to do allergy shots. This means we are back to weekly visits. And I was so happy to have both the big kids on every other week finally. Oy!
Here's to hoping that when we go see the dentist and the orthodontist on June 4 we get some good news rather than "you have 3 kids who need braces and btw they have cavities that need fixed first." The joys of motherhood!
Subscribe to:
Posts (Atom)