Thursday, December 22, 2016

Caleb & NAET

A month or so ago I had Caleb and Kash in for ADHD med checks.  We have a new pediatrician now because our previous pediatrician retired (this was a ridiculously sad moment for me).  Our new pediatrician, Dr. Sandgren, is good with the kids and easy to talk to about whatever issues the kids are having.  He told me that he didn't have a lot of experience dealing with ADHD when we first saw him so I was nervous about that.  So far though, he's been a good fit for us.  At this last visit he told me that Caleb had dropped from the 4% for weight down to the 2% for weight and from the 4% for height down to the 3% for height.  This is not good news.  He hasn't lost any weight, he just isn't, at all.  I talked to him about our experience with the Wellness Clinic and the dietitian last winter/spring.  He told me that if he recommended us to the dietitian that he would recommend us to a different one than the one we worked with before (good to know - he was a moron).  He also told me that if we saw progress at the Wellness Clinic to go back.  He said that Caleb might just be small his whole life, but he needs to stay on the growth curve and not fall off it completely like he has almost done.  He told us that if Caleb didn't make some progress we would be back to getting a referral for the PCMC Failure to Thrive Clinic.

So, we ventured back to see JanaLee at the Wellness Clinic a week and a half ago.  She did a test to check his numbers.  When we originally saw her his numbers were in the low 600's.  He had to be in the 900's to complete the NAET rounds.  Hence the reason he was going so regularly for six months - we had to boost his numbers before doing NAET.  The day of his test, his numbers were in the mid 700's.  This tells me that had I waited much longer to go back his numbers would have been right back where we started in Oct. 2015.  After looking at his results and telling her what the pediatrician said she asked me if he had ever been referred to an endocrinologist.  I told her he hadn't.  She told me that his pituitary and endocrine levels were quite low.  I asked if she thought I should start looking for an endocrinologist.  She asked that we give her until spring to see if she can't do some good before we start looking.  I agreed that would be fine.  I asked if she knew any endocrinologists in the valley.  She told me the ones she does know aren't ones that specialize in dealing with kids.  She said that she thinks if it comes to that, that we would be best off seeing one at PCMC.

Caleb's now taking a pituitary supplement (it's not a hormone supplement - she said she doesn't dare give him a hormone supplement because he's so young), a bacteria supplement and two different kinds of drops twice a day.  Suddenly the kid is hungry more and is vocal about it.  That makes this mama a happy mama!  After visiting with JanaLee and thinking about all of the things she said, I've decided that a pituitary and/or endocrine issue could explain a lot of things about Caleb.  He's lost 8 teeth, but the dentist has pulled 6 of those 8 because they don't get loose at all (he actually has to have 2 more pulled come February).  When he was seeing JanaLee and taking the supplements he grew a good 3+ inches and gained 10 pounds.  Since he hasn't been in since May, he hasn't grown even an inch and hasn't gained a single pound.  He's also gone back to hardly eating anything each day.  I'm hoping that JanaLee can make some more progress with him so that we don't have to go down to PCMC.  However, I'm also grateful that at least we will have a starting point if we do have to go to PCMC.

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